Tag: FTD

Barry’s Journey

September 2016 Resuming my daily care center visits with Barry is harder than I thought it would be. I live in a state of denial while I am up north. I think about Barry all the time while I’m away,

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MY JOURNEY, Mid-September 2016

Determination, GPS and a few mushrooms I am writing this up in the little cabin that I have rented for two months in Grand Marais, Minn., a wonderful little town on Lake Superior not too far from the Canadian border.

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MY JOURNEY – September 2016

Should I sit by his bed until he dies? Today I got a call from the care center where Barry lies in bed day after day. The nurse only calls when something is wrong. I am up north staying at

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MY JOURNEY – August 2016

Being Happy I can’t get over some of the twists and turns that have occurred along this journey with my husband Barry and his FTD. I am no longer surprised when “serendipity” suddenly appears out of the blue. I remember

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MY JOURNEY – July 2016

Working Anywhere I am up north writing this because I really need some uninterrupted time to concentrate on turning my blog into a memoir. I have this week off between teaching classes and some speaking engagements this summer, so I

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Barry’s Journey

Feeding Barry, June 2016 A few weeks ago, I met with the hospice workers and two staff members at Barry’s care center. I wanted to tell them that Barry should no longer be fed. No one should have to live

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LIVING IN THE PRESENT

For years I have heard the term “living in the present” and never really thought much about it. It sounded a bit New Age to me and I didn’t care much to find out what it exactly means “to be

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OUR JOURNEY – May 2016

Barry nears death, May 2016 Yesterday when the nurse and I got Barry out of bed to adjust his twisted sheets, I was stunned to see how thin and weak he has become. The panicky look on his face as

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OUR JOURNEY – Money for nothing

More early signs The other day when I purchased a health drink made with acai berry, I remembered a very desperate time for us. Some memories of years ago are so clear, yet today I can walk into a room

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Our Journey – Laughter…

Where does humor and laughter fit into this crazy illness called FTD? As my father was dying in March 2016, I teased him up until the very end. We had a running joke that I inherited some things from him

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