Year: 2014

Thank you! Thank you!

A few weeks ago there was article about me in the Star and Tribune written by reporter Kevyn Burger. It was about the journey Barry and I are on with his frontotemporal dementia (FTD), our family and my work. It

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BARRY’S JOURNEY No. 26

Peace and comfort in hospice care A few weeks ago, I attended a care conference with a social worker and a nurse at Barry’s care center. Everyone was concerned about his weight loss, falling and food pocketing. Barry had been

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HIKE THIRTY-SIX AND HIKE THIRTY-SEVEN

The beach hike, California After my stay and hike with Diane, I headed to Malibu where my girlfriends had rented a house to celebrate our 60th birthdays. Most of us have been friends since grade school. My friend, Sue, and

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BARRY’S JOURNEY No. 25

Falling and rocking Barry is getting really unsteady on his feet since his doctors cut down on his medications. I can’t help but wonder if we now are seeing the true symptoms of frontotemporal dementia (FTD) that the medications may

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HIKE THIRTY-FIVE

South Coastal Wilderness Trail, California I was so lucky to visit California in June and spend time with old friends. I had been looking forward to this for over a year, holding my breath as my departure date neared that

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BARRY’S JOURNEY No. 24

Dinner with Barry I have been trying hard to get to Barry’s care center around 5:00 each day. His social worker said he could have one beer a day to make his life, well, more normal. So for about a

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OUR JOURNEY – BIG HIPS

You look fat Every once in a while, I see a small part of the old Barry come out. One day late this summer, I took Barry down to the courtyard at his care center. He had not been talking

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HIKE THIRTY-FOUR

Rope swing hike On an early afternoon this summer, I took a simple hike near our first house in Bloomington. It’s a little trail right across Highway 169 on Anderson Lakes in Eden Prairie. The kids and I used to

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BARRY’S JOURNEY No. 23

To drug or not to drug It is the end of summer and life for Barry is a lot different from what it was at the beginning of summer. On Memorial Day, Barry was on his second trip to the

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BARRY’S JOURNEY No. 22

Swallowing issues Quite a few times this summer when I went to visit Barry, I found him unable to swallow. The first time I found him with his lap and chair soaking wet. He could not talk because his mouth

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