BARRY’S JOURNEY No. 8
Full time at the club
It took me a long time to figure out the system. I still have a lot to learn, but I’m finding my way along this journey with Barry.
When Barry was first diagnosed, I was told to go to the Alzheimer’s Foundation. It was there that I learned that Barry should take a driver’s test at Courage Center. It was also there that I learned about getting Medical Assistance and something called a CADI waiver. (The Community Alternatives for Disabled Individuals (CADI) Waiver provides funding for home and community-based services for children and adults, who would otherwise require the level of care provided in a nursing facility.)
Not so easy
I thought it would be easy to sign up for Medical Assistance and get the waiver because Barry has frontotemporal dementia, and, of course, we would qualify! But it took me five tries! Much of the fault was mine for incorrectly filling out the forms. At one point, a Hennepin County representative called Barry to ask if he wanted to get Medical Assistance, and he told them no. So I was back to applying again! Don’t call a guy with dementia please!
When I finally went in person to the county offices, things started to move forward. I had filled out the wrong forms all this time. The representative gave me the right form and said it was written at an eighth grade level. I said, thanks a lot! I went to college and I can’t figure them out!
The question that settled it all
We were lucky this time. A great nurse came to interview Barry and me. When she asked him what he would do if there was a fire at our place, Barry said, “I would call my Mom.” I knew then he would finally get his Medical Assistance and be able to attend adult daycare five days a week. They had openings! I signed him up for Metro Mobility, and now he spends his days painting, visiting with new friends, and having a good lunch.
I can work and not worry about him home all day alone. Then, he became incontinent — so I needed more help!